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Tay-Sachs Disease
Canavan Disease
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Standards for Carrier Screening
Genetic Counseling
GINA
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Take Our Survey
How old are you?
18-25
26-34
35-45
46 & Above
Are you male or female?
Male
Female
What is your religion by birth?
What is your ethnic background?
Eastern European
Spanish
Irish
French
Other...
If other, what is your ethnic background:
Have you been screened for Tay-Sachs disease?
Yes
No
If yes, where
(e.g. Dr.'s office, Tay-Sachs Lab at Jefferson, other hospital lab, synagogue):
If you have not been screened, check all reasons that apply to you:
It never occurred to me
Both my parents are known to be non-carriers
One parent is known to be a non-carrier
Don't think I need to be
Concern about insurance ramifications
Cost
Other, please explain
Are you aware of a history of Tay-Sachs carriers in your family?
Yes
No
If yes, relationship?
Were you screened for Tay-Sachs through an NTSAD-DV program?
Gift of Life
Free student testing
Free first Tuesday testing
May Tay-Sachs Month community screenings
Today, the Tay-Sachs carrier rate in the American (Ashkenazi) Jewish population is:
0
1 in 7
1 in 27
1 in 57
1 in 107
Today, the Canavan carrier rate in the American Jewish population is:
0
1 in 15
1 in 35
1 in 75
1 in 135
As you may know, Irish Americans are at increased risk for Tay-Sachs.
The carrier rate in this population group is approximately:
1 in 25
1 in 50
1 in 75
1 in 100
Do you find the IMPACT informative and worth reading?
Yes
No
If you were born to at least one Jewish parent, please continue responding to the following:
Have you been screened for Canavan disease?
Yes
No
If yes, where (e.g. Dr.s office, Tay-Sachs Lab at Jefferson, other hospital lab, synagogue):
If you have not been screened, check all the reasons that apply to you:
It never occurred to me
Both my parents are known to be non-carriers
One parent is known to be a non-carrier
Don't think I need to be
Concern about insurance ramifications
Cost
Other, please explain
Are you aware of a history of Canavan in your family?
Yes
No
If yes, relationship?
Were you screened for Canavan through an NTSAD-DV program such as Gift of Life, Free student testing, Free First Tuesday, May Tay-Sachs Month?
Yes
No
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